Support & Resources for Rheumatoid Arthritis
by Editor, updated 11/1/2018
Rheumatoid arthritis is complex, and often misunderstood. If you’ve been diagnosed, you may be experiencing physical pain in addition to a variety of emotions. As you learn to navigate life with a chronic condition, you’ll need two critical things: information and support.
Information About Rheumatoid Arthritisw
Inflammatory conditions manifest in different ways for different people. Those who suffer will experience a wide range of symptoms and unique patterns of flares. Because no two cases are identical, there is a diverse body of information about these conditions, including some myths and misperceptions. It’s important to educate yourself in order to be an empowered, proactive participant in your own healthcare. Look for information that is current, credible, and referenced from the peer-reviewed scientific literature. We hope theRAConnection will meet your needs.
Support for RA Patients
These conditions can be lonely and isolating. Those who have not experienced a diagnosis simply cannot understand. It’s important to seek support from others in your situation. People who have been living with these conditions can provide invaluable emotional support as well as practical tips and resources. Find a community you can lean on. It really does take a village.
There are many resources available to you. The following list contains resources where individuals impacted by a diagnosis can access current information, share their experiences and both get and give emotional support.
Advocacy & Support
American College of Rheumatology
The ACR is a non-profit organization for rheumatologists and health professionals. They develop treatment guidelines for RA and focus on education, research, advocacy, and practice support.
Patient Advocate Foundation
Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit case management service that assures access to care, maintenance of employment, and preservation of financial stability for Americans with chronic, life-threatening, and debilitating illnesses.
Patient Advocate Foundation Co-Pay Relief Program
Patient Advocate Foundation’s Co-Pay Relief (CPR) program provides co-payment assistance for prescription drugs to insured Americans who financially and medically qualify. Services are provided through CPR call counselors, and payments are made to the designated payee upon approval.
Complementary & Alternative Therapies
National Center for Complementary and Alternative Medicine
The National Center for Complementary and Alternative Medicine (NCCAM) is the Federal Government’s lead agency for scientific research on the diverse medical and health care systems, practices, and products that are not generally considered part of conventional medicine.